Duchenne

Global Health

Sarepta Therapeutics crisis is huge blow to Duchenne families, company

Adam Feuerstein is a senior writer and biotech columnist, reporting on the crossroads of drug development, business, Wall Street, and biotechnology. He is also a co-host of the weekly biotech podcast The Readout Loud and author of the newsletter Adam’s Biotech Scorecard. You can reach Adam on Signal at stataf.54. Sarepta Therapeutics confronted one of

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Global Health

Sarepta gene therapy deaths must not halt Duchenne progress

They say death is one of life’s few certainties. For a boy or young man living with Duchenne muscular dystrophy, that certainty has a cruel twist: the anticipation of dying young. As mothers of children with this disease, we have wept helplessly in recent months as friends — fellow members of a club we never

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